Tuesday, November 7, 2017

Not so smiley anymore

Reagan had a good day today. Still not sleeping at night, but not as loud and vocal as the night before so at least we slept a little better. She's been a little more serious today. Body is a little more tense. Not the super silly girl from yesterday. She had OT this afternoon and that increased tone presented quite a challenge for her therapist. No doubt she was worn out by the time she was finished, fighting this girl the entire time! Reagan is a different girl every day. Like a box of chocolates, you never know what you're going to get! Always a challenge for her nurses and her therapists. After OT, she had school. We weren't sure if she'd even tolerate being in her chair, but she did OK and tolerated school just fine as well. She did start holding her urine a little this afternoon and needed help going. I guess that goes along with the increase in tone, but I still don't like seeing it. Hoping we're not headed the wrong direction.

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