Monday, May 1, 2017
Reagan had a hard time falling asleep last night. She went a little crazy after the clonidine (a paradoxical reaction) and I eventually had to move her to her chair because she was thrashing around so much in bed. I was hoping she'd instantly fall asleep, but no such luck. I'm not sure how much, if any, she slept last night. We didn't sleep much either because Ryan woke up sick in the middle of the night. It was coming out of both ends. Poor boy. I managed to get him back in bed for a while but he ultimately ended up in our bed. It was a loooong night. Reagan seems very tired today. Sweet girl. They weren't able to squeeze us in until 10:30am this morning, so she had to go all morning without any medicines or food. It took a little longer than usual to place a new tube because usually the old tube is still in and they use that as a guide to get the new one in. Reagan was a great sport though and we eventually got it done and were headed out of there around noon (it broke exactly 5months from the day we had it put in, 5 months is definitely the breaking point for her tubes, gotta get them replaced at 4 months). Ryan was home with Grandpa since he obviously couldn't go to school after the night he had. Reagan had a good rest of the day. She had school/vision and did great with that. She was also still peeing on her own (even going without fluids for over a half a day), so we were super happy about that. Really hoping everyone sleeps tonight. We all need it!