Wednesday, May 17, 2017

A little off but good

Reagan slept well last night and woke up in a good mood. She had a lot of redness on the outer edge of her right eye. Not 100% sure what happened but from what we can tell, she's pointing that left finger a lot and taking direct aim for her right eye! I cut her nails as they've gotten a little too long. Hopefully she'll keep those fingers away from her eyes! She had speech today and was a lot more interactive. Easily engaged. She's had a good day today. A little vocal and some teeth grinding but good. Her circulation is off. She's got cold/clammy hands and feet and the one red ear we typically see with dysautonomia. We had a night nurse tonight and Reagan was very vocal and putting her hands in her mouth nonstop. She was still raring to go when the nurse left at 10. Hoping we can settle this girl down and get her to sleep soon. Silly girl.

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