Tuesday, March 28, 2017


Reagan has had a busy day today. She's been super crunchy and tense in her body. Holding her pees again but thankfully we were able to get her to go a few times today using warm water. I really don't want to have to cath her. She was still pretty spunky this morning but became a little more relaxed after her increased dosage of clobazam. She tolerated all of her therapies /(PT, OT, and school), but was still very tense in her body. Lots of hand in the mouth. Tonight she kept grinding her teeth, so I picked her up to hold her and then I heard actual crunching of her teeth! The next thing I knew, she spit out a crown in my hand! She lost her upper first molar and the new tooth underneath is already completely out! AND the upper canine beside it is also loose (and you can see the tooth underneath)! That's three loose/lost teeth in two days! What the heck?!?! Hoping this tense girl can get some sleep tonight! Ryan's ENT appt today was uneventful. The doctor could barely even look into his ear (he was fighting so much) so he made the decision to just remove it under anesthesia (Thursday we think). Great. The saga continues...

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