Tuesday, February 7, 2017


Reagan slept well last night and slept in until 9:30am this morning. She woke up serious but calm. And no pee, but thankfully 20min or so later she went on her own. She was pretty groggy and even dozed back off to sleep for a bit but was awake in time for PT. Awake, but just barely. Very lethargic. At least her therapist was able to get in some really good stretching! She did raise her arm up to wave to her therapist when she left. Sweet girl. Her OT came shortly thereafter and was able to persuade her to do a little work. She's just been super still and super quiet today. Very unlike her. After PT and OT we went to see her reproductive endocrinologist to talk about the fluctuating hormones and seizures we've been seeing at least once a month. She did a quick exam but most of our time was spent talking about things we can do after Reagan actually "officially" starts puberty (even though her hormone levels are already clearly there). So unfortunately there's not much we can do right now except wait and see (and possibly increase her seizure medication). Ugh. Not exactly what I was hoping for. Then we got to sit through 5 o'clock traffic on our way home! Oh fun. Reagan was great though. Just so laid back and calm today. So still. Zero hint of a smile. Not sure what to expect tomorrow. Praying this is not the calm before a storm...

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