Friday, July 1, 2016

Smiley, crunchy chorea girl

Reagan slept well last night and woke up just before 7am this morning...all smiles! So happy to see her smiling face in the morning! Still very crunchy today. Lots of movement and hands in the mouth, but huge smiles! No therapies today. Everyone is already gone for the holiday weekend. She did have one appt this afternoon with the orthotist. It was a super quick visit and he was able to just bend the plastic on her AFOs to accommodate the bone on her foot that keeps getting bruised! Hopefully this solves her AFO issues. It's been super hot today and we did notice a weird temperature dysregulation/dysautonomia issue going on with my girl. She had the red ear (always her right ear) and her right arm was also super red and splotchy. Not sure what that was all about, but it did seem to fade away as she cooled down. Not sure what to expect this weekend. My girl hasn't really been following a clear pattern lately so it's hard to predict how she'll be feeling. I hoping for a nice relaxing weekend for us all!

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