Tuesday, July 12, 2016

Kooky but sweet

Reagan had a good night sleep last night and woke up this morning super sweet! Talk about a turn around! She's been precious today. A little kooky/vocal at times, maybe slight sensitivity, but over all she's been great! She had PT and OT today and did great with both! She spent some time in her stander today and although she didn't end up with any lasting redness, her feet still don't look quite right. Not sure, but her AFOs may need another tweak. This afternoon she had OT for the first time in weeks!! We finally got insurance approval and were able to start back up! She did well, especially considering the day she had yesterday. There was one period of sensitivity with her iPad, but overall she did well. Tonight we had a new night nurse come for the first time. I'm really hoping this will work out and we can finally make it back to Bible study! Tonight Reagan did get a bit kooky at bedtime. She wasn't getting sleepy, so around 10:30 I finally gave her clonidine and then held her until she fell asleep. She was very restless and kept popping back awake over and over again. Mike moved her to bed where she slept for the next hour or so. Right around midnight (no we weren't even close to going to bed at this point) she woke up and was very vocal. Mike went and laid down with her but she just escalated. She was freaking out. I gave her some oxycodone and she finally settled down and fell back to sleep. Really hoping she sleeps tonight. It's 1am now and I'm just going to bed.




How I found Ryan this morning ;)

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