Friday, July 22, 2016

Bad afternoon/night

Reagan slept well again last night and woke up still calm (maybe a little more serious) this morning. She had an uneventful morning (no therapies today), but did have one seemingly random burst of tears! It just seemed to come out of no where. Her nurse was in the other room so we thought maybe it was for attention? She calmed down as soon as Megan picked her up. Unfortunately that was not the last of the tears. Sometime between 3-4 they started back up again and this time they were not going away. We gave her some oxycodone, but she kept crying. An hour or so later, we tried clonidine. Maybe that helped. A little anyway. She did stop crying but was still very whimpery. Definitely something was bothering her. Maybe in the tummy department? She did have some gas off and on, but it's hard to tell if that's exactly it is that's bothering her. Tonight I stayed upstairs with her, to try to minimize aggravation. She had periods where she seemed fine and periods where she would cry nonstop. She had been calm for a nice long period right before bedtime so I thought maybe, just maybe, she'd be OK to lay in her bed. Nope. That didn't happen. We moved her back to her chair and she went back into another long stretch of crying. Ugh. I'm afraid it's gonna be a long night (it's already been a long night)...

Sitting in a similar orientation you can really see the difference! 
Wow! So grown up!

OMG! He's about 16mo here! So little!

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