Tuesday, June 21, 2016

Little bit kooky but good

Reagan woke up around 2am this morning and she’s been up ever since. Super vocal and a little kooky at times, but happy. We had a new nurse orienting today and that went really well. We’ve been needing additional nursing for a long time now as we’ve had open shifts not getting filled, but we also now have our dear Megan who has been with us for 3yrs leaving us in the fall (to have a baby)!! We are going to miss her and we’re just really trying to stay on top of the nursing agency to make sure they find new nurses before Megan decides to stop working. Reagan had PT and OT today and did well with both. During OT we had the DME rep come out and spoke with her about a new wheelchair (she’s at the end of the growth of her current one) and a new carseat and bath chair. We haven’t been using an actual carseat in the car since they are all just too bulky to fit in our current car situation and the one we have does not provide enough support for her. We’re going to try to get a new car in the fall that has captain’s chairs, so we’re hoping that will help a lot in making everyone a little more comfortable. We’re looking at the Ricaro Monza car seat that swivels. That would really help us when trying to get her into the car (until we pursue the transfer seat we would love to have installed). We can also tilt the carseat with a wedge so that she can recline a little and it comes with a neat foam table that would really help in her positioning. Reagan has been good all day but still very kicky and into her hand. I'm hoping she's going to settle down and get some good sleep tonight, but it's not looking good. 

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