Thursday, June 16, 2016

Loosey goosey (& GI appt)

Reagan slept well last night and woke up this morning a sweet girl. She's been very loosey goosey today. Very still and calm. Pretty precious. She had an early session of PT this morning. She apparently everything loosened up a bit because once in her stander, she decided to have a big poo! Thankfully we were able to salvage her outfit! After PT, we headed to Dell for a GI appt. It's been almost a year since we've seen GI. Thankfully things have been going well, we haven't really had any urgent need to consult with them. We did discuss the ongoing constipation issues and he suggested maybe trying administration of an enema every other day. We'll see. First we have to find a pharmacy that actually carries it! We also discussed increasing her rate up to 80mls/hr (she currently gets 70ml/hr) and possibly taking her off nexium at some point because of all of the negative side effects. Again, we'll see. It'll probably be a while before we try our hand at either of those things. After her doctors appt, we came home and she had OT. She was a good girl for that as well. I wish I could say the same for her brother. After a not so good week at camp, they called me today to actually come get him (and he won't be going back tomorrow). Just too many kids and too few/inexperienced people watching them. Not happy. Reagan was super loosey goosey and snuggly tonight. Mike thinks that means she might be headed toward bad days...I told him to bite his tongue!




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