Thursday, November 12, 2015

Sleep and crying

Reagan slept last night (thank goodness)!! And she just kept sleeping! She woke up briefly and seemed a little more serious/tense but fell back asleep the second her nurse laid her in her beanbag chair! She's been stretching a lot and moving here and there, but staying asleep! Her PT came at noon and did some stretching while she was sleeping and she slept through both that and a diaper change! She continued sleeping all afternoon until right before her nurse left! She woke up not at all happy was crying some very upset/painful cries. Her nurse gave her some oxycodone and that seemed to calm her down, but she didn't fall back to sleep. Every now and then she'll just scream out in a high pitched scream. Not really sure what's hurting her, but we definitely saw some signs of impending bad days yesterday. Too bad...I was really hoping we'd skip them all together this go round. We did manage to get out tonight for a late anniversary dinner, although on our way back I got a text from the nurse saying Reagan was now screaming/crying! I told her to try clonidine and she was calm again by the time we got back. I held my girl and she immediately fell asleep on my lap. We got in some good snuggles and then Mike was able to transfer her to bed without any trouble. Hoping she can sleep and wake up feeling better in the morning. I'm not really sure what to expect! Please keep her in your prayers!

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