Sunday, November 22, 2015

Santa success, but bad afternoon

Reagan slept well last night and woke up this morning in good spirits. A little less smiley, a little more tense, but still OK. We decided to go ahead and get everyone dressed and head over to see Santa. We got there right at 10 and it was pretty empty, we were told that we were the next to go. We took a few minutes to get Reagan's hair pulled back and shoes on and then it was go time! Reagan was a bit crunchy and into her hair, but we were able to position her on Santa where her busy arm was around Santa (poor old man seemed a little apprehensive and worried he wouldn't be able to hold onto her). Then it was brothers turn. He was trying to ignore us and looking at the ornaments on the tree, so we scooped him up and put him in Santa's lap. He did not want to look at Santa. We had to work hard to finally get him to turn his head forward!! We did eventually get a couple good pics so I'm glad we decided to come. Not long after getting home Reagan erupted into tears! It was totally unexpected as she had been so good for Santa! The rest of the day was filled with tears, medication to try to make her comfortable, and napping here and there. Poor girl. She was crying these really sad cries where she took in these loud shallow breaths, it didn't sound good. I eventually hooked her up to the pulse ox and saw that her heart rate was in the 160s (pretty typical for her crying episodes), but her O2 sats were upper 80s-low 90s, which is very unusual for her. Even once she stopped crying and her heart rate went back down to the 120s, her O2 sats stayed in the low 90s. Not sure what that was about. She did, however, seem to calm down as the night went on and tonight I even got some good snuggles and a couple laughs out of her!! Hoping this was it and she's going to be fine tomorrow! Sweet girl, I hate to see her so miserable.





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