Tuesday, August 11, 2015
Soooooo...we definitely spoke too soon when we were telling her doctors it had been almost two months since her last bad day! Today was the day. She woke up fussing around 4 and Mike tried laying down with her. Then around 5 I heard her whining and we decided to move her into her therapy room. I tried giving her pain meds...nothing helped. She wasn't going back to sleep and she wasn't calming down. This has continued all day. She's doing less of the nonstop SCREAMING crying and more of the moaning crying. Very sad heartbreaking crying. With tears. Definitely seems to be in pain. Her nurse has done a good job of holding her and getting her to settle down and fall asleep off and on, but she hasn't really slept any long stretches today. Unfortunately nothing seems to be working. Not oxycodone, not clonidine, not ibuprofen...nothing. Poor girl. I really don't like the idea that we're seeing a reappearance of bad days once again. Praying this is just an isolated incidence. Praying she can get over this quickly and not have to deal with these horrible days again. Praying she can get some much needed sleep tonight. Ugh. Just praying!