Friday, July 24, 2015

Sick of tense

Reagan is still not sleeping! Ugh. She's very vocal and kooky and last night was no different. Eventually I had to turn her monitor down a bit so I could sleep. Then Mike woke me up around 4am and said he thought he heard her pump beeping! Well, apparently it had been beeping for a while and neither of us heard it because the monitor was turned down more than usual. So she started the day a little behind in her total fluid volume, and being so sensitive to that, now she's not wanting to pee! The only times we got pees today were they times we dribbled water on her (3x). She's also still super tense in her body and crunchy...but she's tolerated all 3 of therapies pretty well...all things considered. Her PT mentioned that her right side (legs and arms) are turning inward more than usual, but she thinks it's just a result of her super high tone. If we ever get her relaxed again we can check that. It does seem like she's had an inordinate amount of super tense days. Her body seems to be neurologically out of whack. No real "bad days" per say, but a lot more tense/stressed days (and less real good days). I'm not sure how I feel about that. It just seems that lately she's super sleepy or super stressed. Where's the in between? Awake and happy/relaxed? I'm ready for some of those days...

Look what happened today...


And we have butterflies!!
This is the queen butterfly and the monarch...

No comments: