Tuesday, June 23, 2015
It's been a pretty good day for my girl. She's still got a few things off, the most striking of which is her temperature dysregulation. She's very cool and clammy, yet sweating her back soaking wet over and over again. We kept her on the floor most of the day in an effort to keep her cooler. When she's like this, she gets particularly sweaty sitting in her tomato chair. She's been super crunchy and tense in her body. Less hands in the mouth (thank God) but still into her hair! Very difficult to hold. Despite everything that's off with her, she's been very sweet and smiley. Hoping she can get some sleep tonight and wake up more her self tomorrow.