Reagan had a good day today. It was a gloomy sort of day, so we didn't do much more than lay around the house, but it was good. Watched lots of golf. Ryan begged to go swimming all day, but it kept raining off and on. Poor guy. He LOVES to be in the pool. Reagan was very calm and content today. Chewing on her hands a lot and a bit spitty, but good. Her temperature regulation is off and she's getting sweaty easily so we've had her on the floor off and on today...giving her back some air so it can breathe. Hoping for a good week for my girl.
A few sweet pics of Daddy and his girl on Father's Day!
On August 21, 2007 (at exactly 5 months old), Reagan had her first cluster of seizures. She was diagnosed at 6 months old with Infantile Spasms and 2 years later with Mitochondrial Disease. Life has been a roller coaster for us and our baby girl but we've been blessed with wonderful friends and family to help us though this!