Wednesday, February 4, 2015

Very tense

Reagan slept well last night and woke up this morning still pretty serious/zoned out. Body very tense, very much on edge, but hanging in there. I'm still not sure if these are the tense/stressed days preceding a bad day or if these are mildly off days substituting for bad days? She had laid back sessions of speech and PT...the therapy was laid back, not her! Speech really just worked on oral motor, letting her chew on a chewy tube because she was constantly grinding her teeth and obviously needing that oral input! PT just did some stretching with her. She tolerated everything just fine. Then this afternoon, out of no where, she started crying! She was upset for a little while but we gave her some oxycodone and that seemed to calm her down and she eventually fell asleep! She slept from about 5pm-7pm and woke up much more calm. Still tense, but no more tears. We kept her away from her brother the rest of the night and she did OK. She was starting to look a little tired, so Mike attempted getting her into her bed, but that was a no go! As soon as they laid down, she started freaking out (Mike said she was also getting very chokey/swallowy laying down)! Sometimes she just can't tolerate laying down with no support and prefers her tomato chair. Shortly after moving her to her chair, she dozed off on her own! Hoping she sleeps tonight and wakes up OK in the morning!

1 comment:

Jennifer said...

wow, Reagan is looking so much older!