Saturday, November 29, 2014

Really bad day

So it's been a rotten one today for my girl. On a slight good note, she did finally sleep last night. I could tell when I went in this morning and started talking to her, she was very serious. Definitely not the same girl from yesterday. Thank goodness we had a nurse today. It's been brutal. Reagan has been very upset, lots of biting (requiring arm restraints), flailing, kicking, moaning. It's been awful. The only way I can describe it...imagine someone going through the most painful experience possible (child birth, a major wound/injury, etc) with absolutely no pain relief...no medication that works, no contractions that come and go...just nonstop unrelenting pain! That's what happens during her bad days. She's biting at anything/everything she's in so much pain. She squeezed my finger so hard today, it felt like she might actually break it (seriously)! Such a horrible thing to watch your child endure...EVER...much less, every week! Ugh. And don't even get me started about the craziness about refilling her Lortab prescription (one of the few medicines that seems to help her when she gets like this)...apparently something was passed a several weeks ago that requires a hard copy prescription for anything that contains hydrocodone (so according to Walgreens, that invalidates the 2 refills we have and we can't get it again until we bring in a hand written prescription)!! Hopefully she turns the corner quickly and won't need it tomorrow anyway! Please keep her in your prayers!

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