Tuesday, September 30, 2014
Reagan woke up this morning a little kooky. She was very sensitive and went from laughing to crying in a matter of seconds. It definitely seemed neurologic. She was making weird breathing sounds and her cry was more of a blood curdling scream! Her heart rate was elevated and her O2 kept dipping to the high 80's low 90's and then it would go back up to 99-100% (over and over again). Finally she settled down with us keeping interaction/stimulation to a minimum. She pulled it together and managed to have a pretty good session with the vision therapist. Shortly thereafter she had PT and then OT this afternoon. All things considered she did really well. Her OT commented on how tight her body was and she did a lot of work with her trying to loosen her up. The rest of the afternoon she was good. A little less sensitive but still a little startle-y. Still holding her urine...she went this morning around 11 and then didnt go again until around 8 or 9! She's been very spitty today and sticking her tongue out a lot, but tonight it was nonstop! She was dripping spit but cupping it in with her lips and then choking on it. She was making gaggy faces nonstop all night! It was painful to watch. I just sat in front of her constantly dabbing at her mouth! Thankfully she dozed off when I gave her the clonidine and Mike was able to transfer her peacefully to her bed! Please pray that she sleeps the night through and wakes up without any nausea tomorrow!