Sunday, August 31, 2014
Reagan slept well last night and woke up this morning seemingly OK. Still very serious and tense, but quiet. That didn't last long. I was upstairs talking to the nurse and all of a sudden Reagan broke out into full on screaming crying! I definitely think us talking triggered it, but there was obviously more to it. She seemed to be having tummy pains (or something) that would come and go. She'd be OK and then start screaming again. Over and over. Nothing really seemed to help (oxycodone, ibuprofen, or clonidine) until we tried Lortab this afternoon. She dozed off and slept for a bit. When she woke back up, she was still very tense, but calm (and a little dazed/out of it). She eventually snapped out of it and then was making really great eye contact with Grandma. She was OK the rest of the night. Not happy by any means, but content. Whatever it was that was hurting her so, seemed to have passed. She fell asleep in my arms and I transferred her to her bed all wrapped up in her weighted blanket. Hopefully that will help to keep her asleep tonight (instead of just making her sweat)! Hoping for a better day tomorrow for my sweet girl!