Monday, August 25, 2014
Sleep last night just wasn't happening for my girl. I woke around 2am to hear her rolling around hitting the side of her bed. Considering the retching I had seen a few hours earlier, I didn't think it was wise to leave her awake in her bed. I moved her to her chair and tried giving her a dose of Lortab in hopes that it would settle her down and help her to fall back to sleep. No such luck. She was awake the rest of the night. Other than being awake, she seemed fairly stable, so I decided to go ahead with her scheduled gastric emptying scan (8:30am arrival for a 9am start time). I switched her over to pediatlyte around 6am and then we disconnected her completely around 8am. We fought our way through first day of school traffic and amazingly enough, got to Dell with time to spare. This is the second time we've done one of these scans at Dell (the first was 1/27/14), her GI doctor's thinking was that maybe with the increased nausea we've been seeing (which has been better since switching formulas), maybe she's having dumping syndrome. To be honest, I didn't really see any need to do another one of these tests, but I just went along with it (it's a fairly noninvasive test). Reagan was great! Other than a little licking/smacking, she did fine during the entire hour of laying flat for the test! Afterward (while they checked with the doctor trying to decide if they needed to do any more pictures...sometimes they do another scan or two an or or more after the initial one), we walked around the hospital and looked and the light-up butterfly wall and outdoor courtyard/waterfall. By the time we got back from our little excursion, they told us we were done and we could leave! (So based on that, I'm assuming the scan was normal, but I guess I'll find out more at the care conference Wed!) Reagan was great in the car and when we got home she seemed a lot more relaxed in her body and obviously tired (her poor eyes were completely bloodshot). Her nurse had her on the floor stretching her and playing with her switch toy and she seemed to be enjoying herself! Then all of a sudden she started whimpering, and next thing I knew we had full blown tears! Not sure what it was, but she definitely seemed to be in pain! Her nurse gave her some oxycodone and she eventually settled down and fell asleep (but she was very easily startled in the process)! She woke up once for 15min or so and was still looking very wide eyed and excitable, but thankfully she dozed back off without any major freakouts! As of now, she's sleeping soundly in her bed! Praying she gets some much needed rest!