Wednesday, July 16, 2014
Reagan had a very restless night last night. She fell asleep with the help of clonidine, but it was a restless sleep and by 4am she was wide awake with all of her covers kicked off! I got up, got her all straightened out and covered back up, but I don't think she ever went back to sleep. She sounded a little agitated so finally around 5am, Mike just put her in her chair in the playroom where she could watch cartoons and she seemed to prefer that. She was actually being pretty sweet and precious this morning and it seemed like it might be a good day. Ryan slept in, which is very odd for him (we did hear him up coughing at one point so we weren't sure how well he slept). He seemed to be feeling fine when he woke up and he guzzled down a full cup of milk. He was on his second cup when I got him dressed and we were headed out the door when the projectile vomiting started! It was A LOT of vomit (all of the milk he just drank) and the poor guy had it even coming out of his nose! He settled down and we just took it easy the rest of the day. Lots of juice to drink, which he loved (it's really just 25% juice, 75% water, but he loves it) and starchy foods like toast, rice, and crackers. He was fine the rest of the day. There were a few times where it seemed like something might come up, but it never did and he otherwise seemed perfectly normal (except for the 3 diarrhea diapers). Anywho, Reagan was OK yesterday. Similar to previous days, very sensitive to noises...we had to keep the television turned all the way down because any little song would send her over the edge. She did freak out when Daddy tried to talk to her when he was home for lunch (tears and all), but she quickly calmed down. I think it's just the tone of his voice that sets her off on days like this. Tonight she got very spitty and was doing a lot of the smacking and swallowing. She had a huge retch and I would have sworn she was going to throw up, but she never did. I did start the Zofran. She did get sleepy thanks to clonidine, but she was just too nauseous to put in her bed. Mike transferred her to her chair where she got a second wind and actually started freaking out a bit. I held off, thinking maybe she'd eventually fall back to sleep, but I did have to finally give her Lortab. That almost instantly calmed her down and she was able to fall asleep. Hoping she can stay asleep and that the nausea leaves her alone tonight. Poor girl. Not sure what any of this means for her MRI Friday, but we will just wait and see. Today is actually Day 11 since her last bad day. I definitely wouldn't call this a "bad day", but she's most certainly on edge. Prayers for both my girl AND boy!!