Last night was another miserable one. Reagan started crying as Mike was carrying her to bed. Needless to say, she never made it and we had to instead put her back in her tomato chair. She continued to cry for a while in her chair. It was a very sad pathetic pain sort of cry and there was nothing I could do for her (she had already had all of her pain medications and nothing was working). Eventually she did doze off and we rushed to bed as quickly as we could get there. Again, it didn't last. She was very restless and woke up crying several times. It's just so frustrating to not know what's going on with her or how to help! This morning she seemed to be feeling a little better and even gave us some smiles (although in general she was pretty serious all day). Still very tense, but her temp regulation was slightly improved, and her nurse was even able to get her into her wheelchair and AFOs for a bit (and Grandma got a few smiles)! Still no poo...it's been WAY too long but nothing we've tried has helped her to go. Grandma held her in the poo position several times today and still nothing! Even a warm bath couldn't persuade her to go! Tonight she dozed off with the help of oxycodone (we've had to give it to her off and on all day today) and she seems to really be OUT. Hopefully tonight is the night she finally sleeps! We're going to attempt to get her into her bed! Praying she turns this around soon...I hate to see my precious girl not feeling well.