Sunday, March 9, 2014
Reagan was fighting sleep again last night. We put her in bed around midnight, but she didn't sleep long and was up and kicking around at 3:30am so I got up and gave her a dose of clonidine. That helped her to finally doze off and get some sleep! She woke up super smiley and sweet again! Such a darling girl. She looked tired all day but never dozed off until 3:45pm. And then she was OUT! She slept like a rock in her bean bag chair until 11pm when I saw her stretching so I picked her up and put her in bed...then she was awake! Big giant eyes! So I picked her up and held her for a bit. She wasn't even the tiniest bit sleepy, but clonidine helped her to finally doze back off. What a sweet girl! She's scheduled for a HIDA scan early tomorrow morning (checks the function of your gall bladder). A little boy we know in Houston who also has mito has been having episodes of pain and nausea similar to Reagan's for years now and they just found out (with this scan) that his gallbladder is the culprit and not functioning correctly! Reagan's doctors agree that it's worth checking out! Please keep her in your prayers that everything goes smoothly! Looks like it might be a sleepy day, so that should help!