Friday, January 31, 2014

The same

Today has been pretty much the same as yesterday. My girl slept OK. Her pump was going off like crazy for a while, then she was making some noise and turned completely sideways at 4:30am! I tucked her back in, but I'm not sure if she ever went back to sleep or not. She's still very serious, tense, lots of chorea, clammy, and licky/smacky tonight...not much different from yesterday. Brother is still a mess...runny/stuffy nose, cough, pink cheeks, fussy, not wanting to eat! Tomorrow (Sat) we're headed to Houston for the UMDF Energy for Life Walkathon! We're not sure yet if Reagan will be up for the drive or not. We're just going to see how she is when she wakes up tomorrow. If she's not doing better, her nurse is going to stay here with her while we make the trip! It's going to be a long day of driving, but it's worth it! Lots of friends and family getting together to celebrate our girl and raise awareness for mitochondrial disease! I sure hope she surprises us and wakes up smiling so she can come (she's never missed one yet)! If anyone would like to make a donation in Reagan's honor follow the link below and and click on the Donate Now button on our team page! http://www.energyforlifewalk.org/faf/search/searchTeamPart.asp?ievent=1080346&lis=1&kntae1080346=4528AFF1186640E38E9D4A0DFF4CA440&team=5674810


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