Monday, February 17, 2014
Reagan slept well last night but she was awake and vocal by 6am. She's been a super sweet and smiley girl again today (less sleepy)! Still very "crunchy" (looks like she's constantly doing abdominal crunches) with her hands knotted up in her hair nonstop! She had OT, speech, & school/speech today and did really with everything! Then tonight, out of no where, the nausea started back up. Big throw ups, lots of clear foamy fluid, no idea where it's all coming from!?!? Poor girl! She'll have a huge throw up and then just smile from ear to ear! Sweet girl. We are definitely going to have to make some changes! I don't know if this increase in nausea is from changing her formula or lowering her nortriptyline dose or both, but something has got to give! Tomorrow afternoon she's supposed to have a swallow study (we scheduled it over a month ago) so we really need this nausea to be gone by morning. Please keep her in your prayers and pray for some direction on what we need to do to help alleviate her nausea!