I'm going to start this post with a little blog education. This blog is intended just as the name implies...A Day in the Life of Reagan Leigh. It's a journal that chronicles Reagan's day to day life. It's a tool for myself and others to use to see how she responded to certain medications, when certain symptoms first appeared, when procedures occurred. I can't tell you how many times I've gone back to the blog to look up a date of a procedure or to map out good/bad days (which we just did for her neurologist). I've also been told by many parents how helpful it was for them to see how Reagan responded to a certain medication or therapy (in helping them look for symptoms in their own child or decide on which medication to try). I also write it for our friends and family. Many of whom are long distance and want to know how Reagan is doing and enjoy seeing new pictures of her and her brother. And lastly, to vent. There are days that it's unbearable to watch my child suffer one second longer and on those days I can express my frustration on the blog and ask for prayers! But the blog is not here for me to pretend that everything is always hunkey dorey and that we are this picture perfect family (that is what Facebook is for)!! So, for better or for worse, this is A Day in the Life of Reagan Leigh! On to my girl's day...She had a great day today! She slept like a rock after the clonidine last night and didn't wake up until we had to get her dressed for her neurology appt! Thankfully, when she woke up she was all smiles and no longer nauseous (seriously, thank God)! She was super sweet and so well behaved for her appt...wish I could say the same for her brother! Not a lot to report from the appt. Mike helped me make a bar chart that showed good/bad days, sleep, Lyrica dosage. Needless to say, there wasn't much of a change. There are definite highs and lows (that come in waves), but there doesn't appear to be much of a difference since adding the Lyrica. So...we're taking her off of it (it was a slow wean on, and it will be a slow wean off). Meanwhile, we're waiting to discuss any future changes until we get the results back from the endoscopy/pH impedence study/ sigmoidoscopy scheduled for next Monday. Reagan and Ryan both fell asleep in the car on the way home! They were alternating snores...it was too cute! Reagan continued sleeping once we got home and slept straight through PT. That was OK because it allowed her therapist to get some good stretching done. She woke up in time for a bath and lots of snuggling with mommy tonight! Such a sweetie!! Love this girl!!