Wednesday, January 29, 2014

Tense

Reagan woke up this morning very serious. No fussing, but a definite furrow to her brow! She had an early co-session of OT/speech. We're working on adding choice making to her eyegaze system...so far we've just been using the game program that helps to teach cause and effect! She's been doing well with it, so I'm curious to see how she does as we try new things. She's definitely been more tense today...sometimes that manifests in her tone (stiff as a board) and sometimes in bursts of chorea (looks like she's running in place)! Overall though she's been pretty calm. She had an instance this afternoon where we really thought she was going to burst into tears, but she didn't. Tonight she was a little mouthy again, I thought she might be getting nauseous, and it didn't help that she kept shoving her fingers down her throat. I don't know where all of this is headed (and I don't like the looks if it), but we're just hoping she'll pleasantly surprise us! I'm hoping we'll see a difference, an improvement, since she's now on the full dose of the Lyrica. Please keep her in your prayers! And keep Ryan in your prayers as well! Last night he woke up crying several times (very out of character for him) and today he's had a super runny nose, been a little sneezy, and has super red cheeks (and he's still giving me trouble in the eating department). I'm SO sick of sick!!! Could we all just be healthy already?!?! (Poor baby...he's waking up crying again tonight! Ugh! What are we doing to do with him?!?!)

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