Tuesday, December 17, 2013
Reagan actually slept fairly well last night (in her chair). She dozed off on her own but woke up around 2am fussing. She fell back to sleep with the help of clonidine and slept the rest of the night. She didn't wake up happy, but she wasn't crying either. All morning she didn't really want to be messed with. She was still very stressed, having lots of chorea, and easily agitated (even crying and holding her breath til she turned purple a few times...totally scaring her nurse). By this afternoon, she was much improved. She didn't mind being picked up and didn't even get annoyed by her loud brother! She was still very tense and would have periods where she'd get wide eyed and zone out, but eventually she dozed off without medication. She's in her bed now...praying she gets a good night's sleep and wakes up feeling much better tomorrow!