Saturday, December 28, 2013
Reagan woke up crying last night and was not consolable. We tried clonidine...nothing. She did eventually doze back off after a dose of Lortab, but that only lasted an hour or so. When she woke back up I had to move her to her chair. I tried the bean bag chair first but she just flailed around on it fussing the whole time. She seemed to prefer the more upright position of her special tomato chair. She didn't go back to sleep, but she did stop fussing. This morning she was OK, but still very much on edge, having lots of chorea, grinding her teeth, and not liking having her diaper changed. The nausea set in a little later. She had several throw ups in the morning/afternoon, each increasing a little in volume. They were also a little yellowish (usually they're just clear). I tried draining her g-tube but nothing came out except for a bit of air. As this was going on, her brother decided to give us quite a scare! He started developing a rash all over his body! Started in his diaper area, spread to his tummy, under his arms, on his feet and hands, on his knees! It was really bothering him too! He was itching all over and it seemed to be painful! It looked like hives but we can't be certain. We gave him some Benadryl and that seemed to calm him down a lot. He actually dozed off around 6pm...2hrs after he got the Benadryl. We put him in bed and he's been out ever since! (He usually goes to bed around 8-8:30...so that's very early for him!) Reagan's nausea has been relentless tonight. BIG throw ups! I don't even know where it's coming from, I drain her tummy and nothing comes out! We're desperately hoping the clonidine will knock her out so she can sleep it off! Otherwise it's going to be a really loooong night for all of us! Please keep both of our little ones in your prayers!!