Monday, December 23, 2013

More good days, more good days, more good days...

Sorry for the late post! Busy day! Reagan had another great day today! She woke up smiling and has been smiling ever since! She had one therapy today, speech, and had a really great session! Her therapist is working with her on eyegaze a little more in preparation of her trial of the Tobii eyegaze system in January! I've seen some amazing things with this system so I'm hoping this might be the thing to finally get her "talking"!! We're hoping she'll continue with these good days and give us an extra long good steak this go round! This most recent bad streak really showed us again just how fragile our girl is and that we can't take anything for granted! Just as we start to get comfortable with less bad days and more stability for our girl...POW! We're reminded that there's nothing stable about our life! We started her on neurontin a few days ago in hopes that it will help lessen her bad days. She's taken it before but at a much lower dose. Maybe it will work this go round! Please keep it in your prayers that these good days continue and that we finally get some relief for our girl!!

1 comment:

Diane said...

Whew! So glad she is having good days in time for Santa! Merry Christmas to all of you and a special hug for sweet Reagan!