Wednesday, November 27, 2013

Surprisingly good (and giggly)!

Reagan slept well last night but she was a little restless. When she woke up this morning, there were no smiles...but there were no tears either! She was still very tense, but she gave us some laughs and we all breathed a sigh of relief! She's had a giggly sort of day. Lots of chorea (even worse tonight), chewing on her hands and gagging herself with her fingers, but overall a pretty good day (all things considered)! I really thought we were in for it today. We honestly never know what it expect from this girl! That's just one of the reasons that makes it so difficult for us to make advance plans for anything (including holidays)! And to tell you the truth, even though she's been as good as gold today, there have been signs of the not so good (freaking out during her bath today and getting increasingly stressed tonight). We are definitely not out of the woods for Thanksgiving just yet. Thankfully it's just us (and a nurse) tomorrow, so we don't have to worry about time restraints or ruining anyone's Thanksgiving with a hysterical child (that could be Reagan or Ryan)!! Thank you for keeping us in your prayers and Happy Thanksgiving!!

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