Tuesday, June 4, 2013

Sweetie Sweetness

Reagan was a little restless last night. She was hesitant to fall asleep, so I gave her clonidine. She did eventually fall asleep...but she woke in the middle of the night crying! Daddy got up with her and was able to settle her down and get her back to sleep (but no clue why she was crying). Thankfully, she woke in a good mood and has been a sweet girl all day today. She had OT this morning and did a great job with that. She's been pretty mellow and at times, completely still (which for her is very unusual). Although, her brother's crying did seem to get to her a few times. Hands still cold and clammy. The bite on her arm looks a little better but it's still red. We went to the pediatrician and just missed the phlebotomist, so we'll have to go back again to get her blood drawn for the EPI-743 study. According to their scale, she's gained another 3lbs (44lbs)...but I'm skeptical, so we'll reweigh her next week at her GI appt. Ryan is 27lbs 14oz (87%), 99% height, 99% head circumference! He's a big boy! He's been a handful! Very fussy/whiny...I've had a headache for a week now and I'm guessing he is responsible! Ryan needs to take some lessons from his sister on sweetness!!

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