Thursday, June 6, 2013

A little kooky

Reagan slept fairly well last night. She did wake up again at 2am, her night nurse picked her up and changed her and she fell back to sleep. She put her in her bed around 3am where she slept til 10:20 or so! No OT today (she was sleeping), no speech (she was tied up with car trouble)...but she did have PT. She did OK during PT but she was so tense, she could almost stand up on her own! We took advantage of the tone and put her in her stander after PT. She did well with that, but she was a little easily excited by the iPad. She was a bit easily excited by everything today. We were definitely walking on eggshells with her at times today. Overall, she's been good...smiling and laughing and sweet...but neurologically she's been a bit crazy. Tonight, she'd be perfectly calm and then get a random burst of energy and start laughing and kicking around! I'm not sure where this is going, but hopefully she'll hang in there and continue to have good days. It's way too soon to have bad days again (her last one was just last Thursday)! Please keep my girl in your prayers!





1 comment:

Nancy said...

What wonderful pictures. Thank you for sharing your sweet family and your struggles.