Friday, May 17, 2013

Congested but sweet

Reagan slept well last night and woke up sweet and smiley again this morning. She woke up with a bit of a crusty nose and a little congested, but otherwise good. She had PT early and she worked on sitting balance, on the swing, and she was doing really well with her head control. At the end her therapist put her AFOs on and put her in the stander. Everything was going smoothly, she was happily looking at her iPad, when I noticed a problem. Her AFOs were on the wrong feet! In her therapist's defense, these current AFOs aren't the greatest fit, so it's not really easy to distinguish the left from the right! We immediately took her out and took the AFOs off and her feet were really red (I guess her feet can tell the difference better than we can)! She needed to come out of the stander anyway...that little bit of gravity helped her to finally have a dirty diaper (yeah)! She got a little sleepy for a bit, but she never really dozed off. The rest of the day we just took it easy. It was another good day for my girl. Hoping and praying for a couple more! Her hands and feet were cold and clammy today and she had a bit of the bad day smell, but she's been wonderful so I'm keeping my fingers crossed. Tonight she's definitely restless (so is her brother). She fell asleep on my lap and was very jumpy. After laying her down, I've been watching the monitor and one minute she'll be moving with eyes wide open, and the next, she's completely still and asleep! Of course she'll be restless tonight...no night nurse! I just left her room...she was tossing and turning...she had leaked through her diaper and her pants and bed were wet! She's dry now, so maybe she'll settle down and sleep better. Please continue to keep her in your prayers (I'm going up on the calories in her formula tonight...we're up to 27.5kcal/oz)...come on good days!!!

1 comment:

Jennifer said...

I am a little behind in reading the posts and just saw you will definitely be moving to Austin! Very exciting and we can't wait for y'all to be closer!