Tuesday, March 12, 2013


Reagan fell asleep on her Daddy last night and slept fairly well except for waking at 1am crying! A dose of clonidine seemed to do the trick. She fell back to sleep and slept the rest of the night (which is more than I can say for her brother)! She woke up this morning crying, so I was very worried. But she actually calmed down and ended up having a fairly decent day. She was still very tense, she had the occasional crazy laughs (that bordered on crying), but she was loads better than yesterday. She had OT, speech, and PT today but they all really took it easy on her. She did well all day...even with her bratty brother crying in her ear. But then tonight, she was sitting with the night nurse and seemed happy enough, then all of a sudden she started crying! Agonizing cries. Her whole body was tensed up and she was holding her breath...things she only does when she's in major pain. I'm not sure if it was tummy pains or what (she did have two big dirty diapers today)...but I also gave her the first dose of L-arginine tonight (is it possible she reacted to a vitamin that way)!?!? Thankfully, she calmed down and dozed off after her pm dose of clonidine! Hopefully she sleeps it off tonight and wakes up happy tomorrow. Please continue to keep our girl in your prayers!

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