Wednesday, February 20, 2013
Reagan has had a rough day. She didn't go to sleep until 1:30am or so and then woke up a couple hours later crying! Her nurse was able to get her to settle down and eventually got her back to sleep. When she woke up this morning, she promptly had two dirty diapers and then the crying started! She cried every waking moment, all day long. Thankfully she slept off and on with the help of Lortab and Clonidine, but neither worked for very long. Tonight around 8pm she finally stopped the nonstop crying. She would laugh, then fuss, then be quiet, and then turn on the tears...over and over again. Better than nonstop crying, but still very unstable. You can see the misery in her face. Her eyes are swollen from all the crying and she just has this really really sad look on her face. I hate seeing my girl like this. I'm not really sure what's going on! It definitely wasn't time for a bad day yet...her last bad day was Saturday!! I'm not sure if this was a bad day that was triggered by her tummy pains or if this was just her having a full day of GI pain unrelated to her usual bad days. At this point, I guess it doesn't really matter. However you look at it, we're still not able to find a successful way to control her pain...and that just plain sucks. I'm just hoping and praying that she can get some sleep tonight and wake up feeling much better tomorrow! Please keep our sweet girl in your prayers!