Wednesday, February 27, 2013


Reagan slept well last night and woke up in a good mood again today. Less smiles and no laughs, but she was still very content. She had speech and OT this morning and then speech (through the school system) and "school" this a very busy day therapy wise. She did well with everything and then she even went for a walk with her nurse afterward (while mommy tried to put a cranky brother down for a nap). Tonight she was a little more stressed. No fussing or anything but she had more chorea and she was very tense. She's had gas all day, so it could be that she's having tummy pains, but I don't know. Her temperature regulation was off tonight as well. Clammy hands and feet and a super sweaty back. When she was dozing off, she kept jolting back up over and over again. Hopefully she hangs on at least one more day because tomorrow we're going in for a 23hr EEG. We go in at 1:30pm Thursday and they monitor her overnight and we go home on Friday around the same time. This is just a routine EEG, she hasn't had one in 1.5yrs, so it's time. Plus, we're switching neurologist's, so they always want to have a baseline EEG. So please keep my girl in your prayers and hopefully she'll get some sleep and behave herself tomorrow!

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