Sunday, January 13, 2013
My girl still is not sleeping well. Daddy spent a good portion of the night trying to get her back to sleep. Our nights are starting to blend together...it's hard for me to remember which is which. We go to bed way too late every night, wake up multiple times with one or more kids, and then wake up way too early each morning. Not good. Not good. Reagan, on the other hand, has been surprisingly good again today (this was not the weekend we had anticipated...and I mean that in a good way). She's been a sweet girl again today...putting up with more than her fair share of her brother's whining and crying. She did have another meltdown, when we were talking just a little too loud (still very sensitive)...but overall she's been good. Her temperature regulation has been WAY off...she's sweated her back wet many times today (but her hands and feet are cold). And the chorea really kicked it into high gear tonight. She couldn't hold still for a second and was so tense, it was hard to hold her! I think I know where we're headed...I'm just glad we had a few extra good days. Please continue to keep her in your prayers!