Sunday, December 23, 2012

Getting better?

Reagan only slept about half the night last night. She woke up around 3-4am and then never fell back to sleep! She was good though and just laid in bed kicking around until we got up around 7:30am. Her brother continues to be impossible at night (and during the day)! Both top teeth are now out but his sleep and his mood is yet to improve! Reagan woke up still very serious with the occasional crying meltdown, but she definitely seemed to get better as the day went on. She was still very tense and sensitive to certain things (Adele on tv left her in tears...not the good kind). Still having lots of chorea but tonight she was keeping her hands more still and down by her side. With her legs moving around and her arms under her legs the way they were, she looked like an Irish step dancer! Her temperature regulation is still WAY off. Her body is constantly over heating leaving her soaked in sweat but her arms/hands and legs/feet are as cold as ice! We're still hoping that we're past the worst of it and there are only good days ahead of us. So thankful that our girl may have missed out on the worst of it this time around! And as Christmas nears I'm just thankful to have our girl here with us, knowing so many who have little ones who have gotten their wings way too soon! Thank you for checking in on our girl and wishing everyone a very merry Christmas!!





1 comment:

Clarissa said...

Merry Christmas... praying its a blessed time!