Thursday, December 6, 2012

Another rough one

Reagan didn't sleep much at all last night. Her night nurse held her most of the night. She said anytime she'd doze off and then try to lay her down, she'd immediately wake right back up thrashing around! She's been wide awake all day today as well. Lots of chorea, very tense/stressed, not wanting to be messed with (hating diaper changes)!! It's been another rough day. I'm not sure what's going on. This has been a particularly long bad streak...her first "bad day" was Monday, but she didn't really have great days last week either! This just sucks! I hate it that she has to suffer like this. There's nothing we can do but just sit and wait for this to pass. I want my girl back!!! Please keep her in your prayers!!!

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