Friday, December 21, 2012

A little on edge

Reagan slept all night last night (and didn't seem to move an inch) and woke up this morning still smiling. She was a little more tense, more chorea, and a little more kooky today...but still good overall. She had PT this morning and did really well with that. So well, we even put her in the stander for an hour afterward and she did just fine with that too. She did have a few moments today where a little too much stimulation almost pushed her over the edge, but she was OK. The only meltdown she did have was tonight, right before she had a dirty diaper (for which she was overdue)! Poor thing. I could kinda hear it in her just sounded like a poop cry. She calmed down afterward and was OK the rest of the night. Definitely a little on edge though. We don't really know what to expect over the next few days, but still hoping for the best (Grandma comes in tomorrow). Just a little update...Hudson has had a miraculous recovery and he is already back home. Definitely an answer to prayers. Lucy is improving on iv antibiotics and looks like they may let her go home tomorrow...reading her mom's post totally made me cry! And Liam...I'm sad to report...Liam passed away today. I didn't "know" Liam well, I had just started following him on Facebook about a month ago, but he was a precious little boy with cerebral atrophy and suspected mito. He had been having some worsening seizures the last few days...very sad. Please keep his family in your prayers.

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