Friday, November 9, 2012

Tense but hanging in there

Reagan slept fairly well last night. I was up multiple times with Ryan and she seemed to be asleep most of those times. At 5:30am however, she was awake and I don't think she ever went back to sleep. She was quiet until right around 7am when she started crying. Mike went in and was able to calm her down...she was awake but quiet. Then at 7:40am just before Mike left, she started crying again, but this time he was not only able to calm her down, but she went back to sleep! She slept til right around 8:40am when Ryan woke her up with his happy screaming! She woke fussy, but she calmed easily and then actually was calm most of the day! She's been on edge, hands and feet ice cold and clammy, lots of chorea, but calm and even smiling a little. We even took her outside on the swing for a while. She's still very tense...tonight she freaked out because of an iPad mini commercial (piano music). I've noticed in the past that she doesn't seem to like the piano, but this confirmed it! I'm not sure if it's only when she's on edge or all the time?!?! I have no clue where we're headed, but it sure would be nice to skip the bad days this go round! I would LOVE for her to be able to go to this birthday party on Sunday (for her speech therapist's daughter) at Build-a-bear! Please continue to keep her in your prayers!!!

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