Tuesday, October 9, 2012
They're back. I was really hoping to avoid them, but they've crept back into our lives and my poor girl is paying the price! I'm of course, talking about the bad days. Reagan slept all night last night and then slept in this morning til around 11am. The fact that she was sleeping in, made me nervous in and of itself. I had a doctors appt this morning, so I reluctantly left Reagan at home (still asleep) with her nurse, and Ryan and I went to my appt. Thankfully, she woke up OK. She was actually OK all day long. No smiles, slightly easily agitated, but she was OK. She even had a great session with her new OT. As the afternoon went on, I could tell we were skating on thin ice. Then tonight at 7pm it hit her. She started crying and cried nonstop til 9:30pm or so (I gave her Lortab but it didn't do a thing). Watching her cry like that is just heartbreaking. It literally is torture as a parent to watch your child suffer and there is not a thing you can do to help them! When she finally calmed down, she was quiet in her chair, but still very stressed and easily upset...she didn't want you to even look at her! She had another meltdown when we changed her diaper, but fell asleep after I gave her clonidine. Thank God tonight is the night our night nurse is here! Please keep it in your prayers that she gets some sleep tonight and wakes without tears tomorrow!!! Praying for the shortest bad streak yet!