Thursday, September 6, 2012
Thank you everyone for your input. If anyone else has anything to add about Phenobarbital or Lyrica, please leave a comment! It's always difficult making these decisions...but we do have to try something! Reagan has had a pretty good day today. Last night she finally fell asleep around 11:30 and Mike laid her down in her bed around 12:30. The night nurse saw her moving around at 2 and decided to pick her up. She was OK at first but then she started crying and then wouldn't stop. I heard her, so I got up and gave her a dose of Lortab. Within minutes she was OUT and snoring. Her night nurse held her on her lap for the rest of the night (when she tried to lay her down, she woke back up). She was still asleep when I got up this morning but woke up as soon as she was put down. Thankfully she woke smiling and has been good ever since (talk about relief...we didn't know what to expect). She's been quiet, but sweet all day. She fell asleep only once...just long enough to miss school. She had PT and stood in her stander for a while. The adjusted AFOs finally look like they'll work (the only redness she had this time was from the stander)! She's been pretty spitty all day but not nauseous at all (although I did drain a good amount of fluid from her g-tube tonight). I'm hoping she'll go to sleep and actually get some good rest tonight! Thank you for keeping our girl in your prayers!