Wednesday, April 4, 2012

Praying those bad days away...

Reagan slept through the night again last night!! That's 6 nights in a row...can we go for a full 7?!?! That would be awesome! I'm so glad that my girl has been getting such good rest...Lord knows she needs it! Tonight and tomorrow our night nurse is working, but I hope Reagan sleeps and she has nothing to do!! Reagan wasn't as smiley today but she was content and that's all I care about. She did give us some crazy laughs tonight, and even though they were a little crazy, we enjoyed them nonetheless. The "bad day smell" is still there and she was still a little gaggy today, but her hands and feet were warm and dry. I'm hoping she'll pull through and skip the bad cycle this go round! She certainly could use it! Thank you for keeping her on your prayers!

1 comment:

Clarissa said...

Praying like crazy she continues on this good stretch! Crazy how the feel of their skin (cold, clammy, hot, sticky, warm, dry) are such an indicator of whether or not good/bad days are coming. To answer your question: all Abigail's doctor has said is that her bad cycles (severe movements/chorea, very upset/crying/screaming/crazy laughs, blank/zoned out eyes, trying to bite, vomiting more, retching more, sleeping less, severe sweating, etc) are autonomic related... so really no answer or reason! :O( Just her bodies inability to regulate everything, I guess. It's so hard sometimes...
*hugs*