Thursday, March 22, 2012

Start clonidine patch

Reagan slept well last night and woke up all smiles this morning. She's been a good girl today but she's also been very sensitive. There were several times today when she either gave us the frowny face or was moved to tears because we were talking (it started last night when Mike and I were talking and she gave us the biggest pouty lip you've ever seen). I've also noticed she's been a little clammy today as well. Not a good sign. Her party is Sunday so we're going to need some serious prayers that she holds out and somehow manages to have a good day on Sunday! I spoke with her doctor yesterday and we decided to try the clonidine patch with her (we applied it this afternoon). This will give her the equivalent of one 0.1mg pill throughout the day and then we can supplement with the pills to increase her dose as needed. The hope is that the clonidine alone will work the way it did before, back when she went an entire month with only good days. If not, then we'll have to investigate the use of opioids. Even though she's had a few outbursts today, overall she's been a sweetie. Very smiley and happy to do whatever. This morning she had vision and "school" and she was good for both. She was a little groggy during vision and she tried to fall asleep just before her teacher came, but she pulled through and did well for both. Hopefully she sleeps tonight and wakes happy again tomorrow! Come on good days...

Here are some pics I took yesterday...







4 comments:

Zoey's mom, Heather said...

Okay, so you tell me that Reagan gets upset when Ryan cries ... I think she is cracking up in that picture probably wondering what his problem is!

I am thrilled with sweet, not so much with clammy. But here's hoping Reagan got the memo, much like the Bahamas and Seattle and California trips and she knows that we need happy, smiliy girl for Sunday.i

Loved looking back at the birthday pictures. Hard to believe I was around, well in the cyber sense, for all of them

Jamie - AZ said...

Love the pics! They are both so beautiful! Prayers for a good night and yes only good days !

Kristy said...

So Stinkin CUTE!!

Clarissa said...

praying for a good day Sunday!
love the pictures!