Thursday, March 8, 2012
First off, I want to thank everyone for their kind comments and most of all prayers! It's certainly been a rough past few days. Unfortunately last night was no better. Reagan was crying nonstop last night...her nurse felt so helpless she was crying as well (I certainly know that feeling). Her nausea wasn't as bad, just because her body can only do one or the other, and last night hysteria won. She was kicking and screaming and fighting...her nurse even took her into the kitchen to get her further away from our bedroom in hopes that she wouldn't wake us up. It didn't work, we could still hear her. She slept about 30min after her dose of clonidine, then I got up when I heard her screaming and gave her some Lortab and Mike laid beside her til she fell asleep and she slept 1hr, then she slept another hour later on...but she screamed every waking moment in between. This morning wasn't any better. You could tell she was beyond tired, but she just couldn't fall asleep. I gave her another dose of clonidine but it didn't seem to do much. Then right around 11am, I took her from her nurse and held her. She was fighting me nonstop, but I put her on my knee and bent her over at the waist and she seemed to calm down. The next thing I knew, she was OUT. I put her in her chair where she slept til 4pm. I was really hoping she'd continue sleeping, but at she seemed significantly improved when she woke up. She wasn't happy or smiling or anything like that, but she was much calmer and no longer nauseous. She had this groggy/out of it look in her eyes...but who can blame her, going on no sleep for days. We gave her a bath and then around 6:30pm she dozed back off. Mike put her in her bed (for the first time in days) and she was OUT. She's been sleeping soundly ever since...praise God. Hopefully she'll sleep through the night and even some of tomorrow to let her poor body rest from all of these bad days. Thank you so much for your prayers and please keep them coming...we need a nice long good streak this time around so our girl can recover from all she's been through!