Saturday, March 17, 2012
Today has been a hell of a day. Reagan didn't sleep a wink last night for the nurse. She was fine as long as the nurse left her alone in her chair, but the second she tried to change her diaper, she would freak out and start screaming bloody murder. She was OK for an hour or so this morning but then the yelling & screaming started up and continued all day long (which is great when you have a newborn trying to sleep). I'm sure part of it is exhaustion. Her eyes are red and you can tell she's exhausted, but she hasn't slept in days. She's still trying to bite nonstop. We've had arm restraints on her at all times, but we've tried alternating with her helmet (which makes her overheat too quickly) and some gloves (which she bites at and swipes at her face). There's really no good way to keep her from biting herself. Her poor right hand is so chewed up...I don't know if it's ever going to heal. And she can't sit still for even a second. Her arms and legs are flailing and going nonstop. The clonidine isn't helping, tylenol doesn't help, and neither does Lortab. She's just so resistant to medications...it seems like we'll never find something that works for her. It's very frustrating. She's not the only one that was crying today. It's so hard watching her go through this. Yelling and screaming nonstop and there's nothing we can do to help her. Please keep it in your prayers that she turns a corner soon...I don't know how much more of this any of us can take!