Monday, December 19, 2011
Reagan woke up several times last night but we never had to pick her up and she eventually went back to sleep in her bed and got a decent night's sleep. Of course, we had to get up and lay in bed with her (Mike the first time and me the second)...she was very restless but holding her arms down seemed to help her calm down and get back to sleep. She woke up in a decent mood. Still not smiley, but not at all fussy either. No therapies though...the next two weeks will be pretty slow with only OT and Speech. School is out so she won't have any of those visits and her PT will come tomorrow but then will be out until after the 1st. Hopefully Reagan's mood will continue to improve as we get closer to Christmas. She's actually been a good girl all day today. We had to take her in for her 8 week EPI-743 bloodwork and she didn't even make a peep when the lady had to stick her three times!!! Poor thing! The first time she hit the vein but the needle popped back out when she was reaching for the tube! Then she tried her hand, even though I told her that was a lost cause, she hit the vein but immediately lost it and then fished around for a while (and left a horrible bruise). She went back to the good vein and finally got it. Ugh. Reagan was so good through it all. She's been pretty mellow all day. Giving us little laughs here and there, but still pretty serious. Hands and feet are still cold and clammy. Tonight she coughed a couple times and then 10min later she threw up. Hopefully we're almost done with these off/bad days. I'm ready to see a smile again!!! Thank you for your continued prayers!